I find these types of assignments so rewarding that I intend to do lots more of them. I feel blessed that I get to do what I love for a living so it feels so good to do something special. The first of these projects was with AJ Gonzales, a very special little boy suffering with fibrodysplasia ossificans progressiva (FOP) or “Stone Man Syndrome.” I first saw AJ’s story on Fox29.
And earlier this month The Gloucester County Times did this article.
There really needs to be more awareness about FOP. There are only 287 reported cases in the US and AJ is number 286.